Rare Disease Day

Today is Rare Disease Day, a day where people with rare diseases are celebrated as well as raising awareness and improving knowledge of rare diseases.

16p11.2 Duplication
Prior to my son’s diagnosis, there were people who thought that I was over exaggerating about my son’s behaviour and some who thought that it was just me not coping with being a parent. With my son being my first and only child, I fell under the category of: you are a first-time parent so do not have a clue what you are talking about.

It’s okay to be different: Megan’s Personal Blog

As a parent blogger who writes about autism topics, I soon realised that when you enter the world of online, you become part of a community. I personally feel that it is important to acknowledge others within the autism community who are inspirational and who want to raise autism awareness.
Megan, aged 19 has a personal blog on Facebook called: “It’s okay to be different”.

February Half Term 2019

I always do a countdown for my son in the lead up to any school holiday because he has a poor perception of time, understanding of the seasons and days of the week. If it has no relevance to him then he is not interested. This particular half term has led to more confusion as although his half term holiday has already started, in other counties some children are off school next week